Today's blog is different than I usually write. Today, I need to just share my heart...to nobody in particular...just ramble. Tomorrow is a big day...a day that could change the course of my life...and not necessarily for the good...physically speaking...humanly speaking.......BUT GOD!
I will try and explain things as I go along in case anybody stops by who doesn't know me. I have Multiple Sclerosis...have had it for at least nine years...probably more like 20 years. After almost seven years of one debilitating relapse after another, and losing a good part of my vision, God opened the door for me to get into the MS Center in Dallas where I was finally diagnosed and put on Tysabri. I've not had any major exacerbations since. I have days the MS affects me but not to the extent it was and I've not had any more attacks of Optic Neuritis which is what has caused my vision loss.
Tysabri carries with it a risk of getting a rare brain infection called progressive multifocal leukoencephalopathy (PML), which is always fatal. New research shows this risk increases in patients who have been on the drug for more than two years. Because of this new research, we are required to meet with our doctors after our 24th infusion to discuss future treatment plans.
I had my 24th infusion last month and tomorrow is decision day for me. Up to this point, I have felt the benefits of Tysabri have been greater than the risk. The risk is now at a level which I am not near as comfortable taking. However, the reason I was put on this particular MS therapy is because it is the only one known to target the area of the brain that affects the optic nerves.
The optic neuritis aspect of the MS had begun to enter the progressive stage and we were able to stop that through this therapy. To switch to another form of therapy would mean treating the MS as a whole, hoping--and certainly praying--it will keep the optic nerves under control......BUT GOD!!
In addition, I would have to go off the Tysabri for several months before I can start on any other form of therapy...hoping, praying and a great deal of trusting God that my body stays in remission without the aid of any drugs......BUT GOD!!
This Texas heat gets harder and harder on me every year. So, right now, the thought of going three to six months without any form of therapy feels like a death sentence in itself. Yet, I know that relapses with MS are not fatal and even losing my vision altogether would be better than death. Still, only God knows which is the greater risk. I cannot base my decision on fear...fear of death or fear of total blindness......BUT GOD!!
I know God knows the answer. He tells me to lean not on my own understanding; that He will direct my paths. He tells me that He gives wisdom; from His mouth come knowledge and understanding. He tells me to seek Him and He will be found. He tells me to cast my cares upon Him...to be anxious for nothing.
I am seeking Him and trusting Him for the right answer...I just would like Him to show me before I go tomorrow. See, I have an MRI before my appointment. Because I'm allergic to the MRI contrast, I have to be pre-medicated with Benadryl...which knocks me out. So, when I see my doctor a couple of hours later, I'm not going to be the most coherent person in the world. I'm sure my doctor will discuss the risks and options--which we've already gone over--and I don't want to make a decision based on something she says that may sound a little different due to my drugged state of thinking. I want to make a decision when I'm of a sound mind.......BUT GOD.
Yes, that is when I have to step back and say, "BUT GOD". I have to remember that if God can speak through a donkey, he can speak the words that need to be spoken through my Benadryl laced mind. I have to remember the days when the MS had so messed up my cognition that I couldn't put two words together, yet I delivered His truths to a group of women, changing lives so dramatically that they talk about it still today. Yes...BUT GOD!!!
He is still God and He will give me direction about what to do regarding my treatment. It will be the right decision; the right words will come to me when I need to know them; and He will make sure they come out of my mouth when it is time to tell my doctor. Ahhh...peace......ONLY GOD!!!